Tag: Rare disease
CureDuchenne Launches Duchenne Muscular Dystrophy Biobank
CureDuchenne, a global leader in research, patient care, and
innovation in improving and extending the lives of those living with Duchenne
muscular dystrophy (Duchenne), has initiated...
Meeting – C-Path and NORD Launch The Rare Disease Cures Accelerator-Data and Analytics Platform
The Critical Path Institute (C-Path) and the National Organization for Rare Disorders® (NORD) will host a meeting on Tuesday, September 17 in Bethesda, Maryland,...
The Dalglish Family 22q Clinic And Biobank
The Dalglish Family 22q Clinic is the world's first multidisciplinary clinic devoted to adults with 22q11.2 deletion syndrome (22q11.2DS) and their families, located at...
The PURA Syndrome Biobank – An International Resource
The PURA gene is located at chromosome 5, band q31 . It encodes the Pur alpha (PurA) protein which is a sequence-specific single-stranded-DNA-binding protein...
🔥 Popular Posts
10 Largest Biobanks in the World
Disclaimer: This article is not intended to be definitive. It was sourced from freely, openly available information on the internet. Due to the vastness...
📌 Recently Featured
Canada to Establish First National Multiple Myeloma Biobank With $6 Million Gift
Major philanthropic investment: An anonymous $6 million gift will support Canada's first national biobank dedicated exclusively to multiple myeloma research.
Research infrastructure: The...
