Related Publications
Biopreservation and Biobanking
The first journal to provide comprehensive peer-reviewed coverage of biospecimen procurement, processing, preservation and banking, including ethical, legal, and societal considerations.
Best Practices
ISBER Best Practices
The ISBER Best Practices: Recommendations for Repositories Fourth Edition presents the most effective practices for the management of biological and environmental specimen collections and repositories.
NCI Best Practices
The National Cancer Institute (NCI) developed the NCI Best Practices for Biospecimen Resources based on extensive research and expert input into the state of NCI-funded biospecimen resources and the quality of biospecimens used in cancer research. The NCI Best Practices outline the operational, technical, ethical, legal and policy best practices for NCI-supported biospecimen resources.
Education Programs
Introduction to Biobanking Course
Developed by the Canadian Tissue Repository Network and UBC Office of Biobank Education and Research
IARC Biobank Learning Platform
Developed by the International Agency for Research on Cancer (IARC)
Master of Science Biobanking
Developed by Biobank Graz
Related Societies/Associations/Organizations
International Society for Biological and Environmental Repositories (ISBER)
European and Middle Eastern Society for Biopreservation and Biobanking (ESBB)
Biobanking and Biomecular Resources Research Infrastructure (BBMRI)
Biorepositories and Biospecimen Research Branch (BBRB)
American Association of Blood Banks (AABB)
American Society for Investigative Pathology (ASIP)
The Spanish Association of Tissue Banks (AEBT)
Asian Biological Resource Centre Network (ABRCN)
Common Access to Biological Resources and Information (CABRI)
European Association of Tissue Banks (EATB)
Genesys Gateway to Genetic Resources
Organization for Economic Cooperation and Development (OECD)
Tools
Federal Guidance on Stored Tissue
NCI
NCI Cancer Diagnosis Program, Human Specimens for Research: Legal and Ethical Issues.
NHLBI
Human Tissue Repository Guidelines
NTIS National Technical Information Service
CDC – National Office of Public Health Genomics
Links to reports and publications related to genomics and public health, including articles on DNA banking for epidemiological studies.
OHRP
Office for Protection from Research Risks
Issues to Consider in the Research Use of Stored Data or Tissues
HIPAA
Health and Human Services
U.S. Department of Health and Human Services, “Research Repositories, Databases, and the HIPAA Privacy Rule
Non-Profits
Ambrose Monell Cryo Collection
American Museum of Natural History
ARCTOS
Database server for Arctic, Boreal, & North Pacific specimen-based research, University of Alaska Fairbanks Museum.
The Biobank Resource Centre (BRC)
Delivers tools and services for all types of researchers and biobankers.
BIOTA
The Biodiversity Database Manager created by Robert K. Colwell, University of Connecticut.
CBCTR
The National Cancer Institute (NCI) Cooperative Breast Cancer Tissue Resource
GAPPS The Global Alliance to Prevent Prematurity and Stillbirth : access SOPs, data dictionary, and consent template here.
GBIF
The Global Biodiversity Information Facility: international organization enabling universal access to biodiversity information via the Internet.
LRIG
The Laboratory Robotics Interest Group: special interest group focused on laboratory automation.
SLAS
Society for Laboratory Automation And Screening
Translational Genomics Research Institute (TGen)
The Translational Genomics Research Institute (TGen) is a non-profit 501(c)(3) organization focused on developing earlier diagnostic
Policy Statements
ASHG
American Society of Human Genetics. Statement on informed consent for genetic research. Am J Hum Genet 59(1996):471-474
ACMG
American College of Medical Genetics Storage of Genetics Materials Committee, Statement on Storage and Use of Genetic Materials, 1995
