The Role of Patients in Medical Research is Evolving, Thanks to Patient-Facing Health IT

In the fields of biobanking and clinical research, the active role of the patient as more than a donor or study subject is becoming more prevalent as biobanks and researchers increasingly recognize the added value of patient engagement in...

Biospecimen Quality in Clinical Research

Abstract Biospecimens form an integral part of many clinical research studies. The production of valid clinical data sets depends largely upon the quality of biospecimens utilized in the study. Annotations of biospecimens help unveil information related to disease prognosis, diagnosis,...
Precision medicine requires large amounts of data.

Biobanking Science: Patient Attitudes to Precision Medicine Studies

Governments and research organizations around the world are conducting large long-term precision medicine projects to understand how genetic and lifestyle factors cause disease. Longitudinal projects such as the UK Biobank and the Precision Medicine Initiative in the US collect...

Biobanking Consent: Informing Human Subjects of the Possibilities

As researchers, we are familiar with why we have the need for biobanking regulations due to the story of Henrietta Lacks. HeLa cells survived in vitro more than 60 years ago and are still contributing to medical science advancements.1...

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