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Ethical & Legal & Societal

Observations On Recruitment For The Mayo Clinic Biobank

In order to draw generalizable conclusions, it is important that cohort studies represent the population of interest faithfully. Against this backdrop it has been noted that not all individuals are equally willing to participate in biobank related studies. Factors associated with willingness...

Biobanking Consent: Informing Human Subjects of the Possibilities

As researchers, we are familiar with why we have the need for biobanking regulations due to the story of Henrietta Lacks. HeLa cells survived in vitro more than 60 years ago and are still contributing to medical science advancements.1...
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Dynamic Consent In Biobanking Using Dwarna – A Blockchain Solution

A research team with senior author Jean-Paul Ebejer from the Centre for Molecular Medicine and Biobanking at the University of Malta has created a blockchain solution for dynamic consent in biobanking called Dwarna. They published their solution in...
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The Need for Patient-Pushed, Real-World Data on Neurodegenerative Diseases

Neurodegenerative diseases, is a collective term for a group of disorders characterized by the progressive neurodegeneration of brain cells, leading to dysfunction(s) and abnormal structure(s) in the central and/or peripheral nervous systems. One of the main causes of neurodegeneration...

New Trends in Biobanking Based on Main International Events in 2019

What were the most attractive biobanking ideas in 2019? ISBER (International Society for Biological and Environmental Repositories) and ESBB (European, Middle Easter and African Society for Biopreservation and Biobanking) are the two biggest world leaders in the biobanking area. Every...

How Do People In Nashville React To The Biobank Consent Process?

Gathering informed consent from participants is a pillar of biobanking. As ambitious biobanking projects such as All of US and UK biobank proliferate and become ever larger, the benefits and the potential risks for participants also grow. It is...

The Role of Patients in Medical Research is Evolving, Thanks to Patient-Facing Health IT

Sponsored content brought to you by  In the fields of biobanking and clinical research, the active role of the patient as more than a donor or study subject is becoming more prevalent as biobanks and researchers increasingly recognize the added...

Knowledge, Perceptions and Attitude of Egyptian Physicians Towards Biobanking Issues

The complete mapping of the human genome has greatly expanded the ability to better understand the genetic basis of human disease, thus ushering in new era of personalized medicine1. Thus there is a need for the establishment of biobanks...

Webinar: COMPLi® HBS Legislation Series : Ukraine

Date/Time: May 12, 7:30-8:30am PDT Register Here Local legislation surrounding the sourcing of human biosamples for research purposes varies greatly around the world. In this webinar we will explore and better understand how Ukraine governs the recruitment, collection, storage and distribution...

Identification of Factors that Influence Willingness of Native Americans to Donate Biospecimens: Increasing Equity...

American Indian and Alaska Native (AI/AN) people have a long history of lower life expectancy and higher disease burden compared with the general US populationand are more likely to suffer from chronic diseases1. Addressing AI/AN health inequities is a...

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