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Ethical & Legal & Societal

Biobanking Consent: Informing Human Subjects of the Possibilities

As researchers, we are familiar with why we have the need for biobanking regulations due to the story of Henrietta Lacks. HeLa cells survived in vitro more than 60 years ago and are still contributing to medical science advancements.1...

Biospecimen Quality in Clinical Research

Abstract Biospecimens form an integral part of many clinical research studies. The production of valid clinical data sets depends largely upon the quality of biospecimens utilized in the study. Annotations of biospecimens help unveil information related to disease prognosis, diagnosis,...
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Dynamic Consent In Biobanking Using Dwarna – A Blockchain Solution

A research team with senior author Jean-Paul Ebejer from the Centre for Molecular Medicine and Biobanking at the University of Malta has created a blockchain solution for dynamic consent in biobanking called Dwarna. They published their solution in...

New Trends in Biobanking Based on Main International Events in 2019

What were the most attractive biobanking ideas in 2019? ISBER (International Society for Biological and Environmental Repositories) and ESBB (European, Middle Easter and African Society for Biopreservation and Biobanking) are the two biggest world leaders in the biobanking area. Every...

How Biobanks Can Support Personalized Medicine

Biobanks should be an integral part of a comprehensive research platform, not exclusively viewed as a service provider or freezer farm managed with excel sheets. For biobanks to be be viewed as a contributing partner and one that can...

The Role of Patients in Medical Research is Evolving, Thanks to Patient-Facing Health IT

Sponsored content brought to you by  In the fields of biobanking and clinical research, the active role of the patient as more than a donor or study subject is becoming more prevalent as biobanks and researchers increasingly recognize the added...

Four-Part Mendelspod Podcast Series On Human Biospecimen Quality And Regulations

Scientist.com has announced the completion of a four-part podcast series on human biological samples and biobanking. The four guests offered thoughtful insights and ideas from an academic, pharmaceutical and small business perspective. The episodes were hosted by, and are...

How Do People In Nashville React To The Biobank Consent Process?

Gathering informed consent from participants is a pillar of biobanking. As ambitious biobanking projects such as All of US and UK biobank proliferate and become ever larger, the benefits and the potential risks for participants also grow. It is...
Precision medicine requires large amounts of data.

Biobanking Science: Patient Attitudes to Precision Medicine Studies

Governments and research organizations around the world are conducting large long-term precision medicine projects to understand how genetic and lifestyle factors cause disease. Longitudinal projects such as the UK Biobank and the Precision Medicine Initiative in the US collect...
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The Need for Patient-Pushed, Real-World Data on Neurodegenerative Diseases

Neurodegenerative diseases, is a collective term for a group of disorders characterized by the progressive neurodegeneration of brain cells, leading to dysfunction(s) and abnormal structure(s) in the central and/or peripheral nervous systems. One of the main causes of neurodegeneration...

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