Resources & Links

Related Publications

Biopreservation and Biobanking
The first journal to provide comprehensive peer-reviewed coverage of biospecimen procurement, processing, preservation and banking, including ethical, legal, and societal considerations.

Best Practices

ISBER Best Practices
The ISBER Best Practices: Recommendations for Repositories Fourth Edition presents the most effective practices for the management of biological and environmental specimen collections and repositories.

NCI Best Practices
The National Cancer Institute (NCI) developed the NCI Best Practices for Biospecimen Resources based on extensive research and expert input into the state of NCI-funded biospecimen resources and the quality of biospecimens used in cancer research. The NCI Best Practices outline the operational, technical, ethical, legal and policy best practices for NCI-supported biospecimen resources.

Related Societies/Associations/Organizations

International Society for Biological and Environmental Repositories (ISBER)

European and Middle Eastern Society for Biopreservation and Biobanking (ESBB)

Biobanking and Biomecular Resources Research Infrastructure (BBMRI)

Biorepositories and Biospecimen Research Branch (BBRB)

American Association of Blood Banks (AABB)

American Society for Investigative Pathology (ASIP)

The Spanish Association of Tissue Banks (AEBT)

Asian Biological Resource Centre Network (ABRCN)

Cryogenic Society of America

Common Access to Biological Resources and Information (CABRI)

European Association of Tissue Banks (EATB)

EuroBiobank

Genesys Gateway to Genetic Resources

Organization for Economic Cooperation and Development (OECD)

Tools

Biobank Economics Modeling Tool

P3G Biobank Toolkit

Federal Guidance on Stored Tissue

NCI 
NCI Cancer Diagnosis Program, Human Specimens for Research: Legal and Ethical Issues.

NHLBI
Human Tissue Repository Guidelines

NTIS National Technical Information Service

CDC – National Office of Public Health Genomics
Links to reports and publications related to genomics and public health, including articles on DNA banking for epidemiological studies.

OHRP
Office for Protection from Research Risks
Issues to Consider in the Research Use of Stored Data or Tissues

Population Genetics

HIPAA

Health and Human Services
U.S. Department of Health and Human Services, “Research Repositories, Databases, and the HIPAA Privacy Rule

Non-Profits

Ambrose Monell Cryo Collection
American Museum of Natural History

ARCTOS 
Database server for Arctic, Boreal, & North Pacific specimen-based research, University of Alaska Fairbanks Museum.

The Biobank Resource Centre (BRC)
Delivers tools and services for all types of researchers and biobankers.

BIOTA 
The Biodiversity Database Manager created by Robert K. Colwell, University of Connecticut.

CBCTR
The National Cancer Institute (NCI) Cooperative Breast Cancer Tissue Resource

GAPPS                                                                                                                                The Global Alliance to Prevent Prematurity and Stillbirth : access SOPs, data dictionary, and consent template here.

GBIF 
The Global Biodiversity Information Facility: international organization enabling universal access to biodiversity information via the Internet.

LRIG 
The Laboratory Robotics Interest Group: special interest group focused on laboratory automation.

SLAS
Society for Laboratory Automation And Screening

Translational Genomics Research Institute (TGen)
The Translational Genomics Research Institute (TGen) is a non-profit 501(c)(3) organization focused on developing earlier diagnostic

Policy Statements

ASHG
American Society of Human Genetics. Statement on informed consent for genetic research. Am J Hum Genet 59(1996):471-474

ACMG
American College of Medical Genetics Storage of Genetics Materials Committee, Statement on Storage and Use of Genetic Materials, 1995