InformedDNA®, has been selected by the Coriell Institute for Medical Research to provide genetic counseling services to participants in the Coriell Personalized Medicine Collaborative (CPMC) research study.
The Coriell Institute, founded in 1953, located in the Greater Philadelphia area is a global leader in understanding how our personal genomes affect our health. Coriell is recognized as one of the world’s leading biobanks, distributing biological samples and offering research and biobanking services to scientists in 85 countries around the globe. It is also the trusted steward of world-renowned collections for the National Institutes of Health, disease foundations and commercial clients.
Founded in 2007, InformedDNA, headquartered in St. Petersburg, Florida, is the authority on the appropriate use of genetic testing. Leveraging the expertise of the largest full-time staff of independent board-certified genetics specialists, InformedDNA helps to ensure health plans, hospitals, employers, community clinicians, and patients all have access to the highest quality genetic services. The company’s key offerings include clinical genetic counseling, genetic testing utilization management, clinical trial support, and personalized hereditary risk assessment and prevention solutions.
A pioneer in genomics, Coriell is examining the utility of using personal genetic information in clinical care through the CPMC research study. The study, initiated in 2007, is a multi-party endeavor of volunteer study participants, physicians, scientists, ethicists, genetic counselors, pharmacists, information technologists, and hospital and academic partners. Thousands of CPMC study participants have viewed their genetic and non-genetic risks for disease and drug response. How their lifestyle behaviors change – and whether they choose to share their results and with whom – is revealing the utility of genetic information in clinical care.
“We needed an expert genetic counseling team licensed in all 50 states, covering all medical specialties, experienced in working with foundations, and able to ramp up quickly in order to address recent changes in the field. InformedDNA fit the bill, offering counseling sessions via phone or video from board-certified, master’s degree-level genetic counselors. They’ve also been able to integrate our systems with theirs, enabling seamless delivery for our study participants,” – Joseph Jarvis, PhD, director of genomic risk reporting and principal investigator for the CPMC study.
“Participants in the CPMC study ultimately have access to more than 30 genetic tests. Our genetic counselors are not only trained in medical genetics, but also in psychosocial counseling. So, in addition to helping participants understand their genetic test results, they provide support while participants consider options based upon those results,” – Jana Pruski-Clark, MPH, MS, CGC, senior vice president of clinical services at InformedDNA.